Specialist care at home

Huntington’s disease care at home

Consistent, patient support at home for people living with Huntington’s disease, planned with the family and the specialist team.

In short

Huntington’s disease affects movement, thinking and mood, and needs change over years. Good care at home is consistent, unhurried and planned closely with the family and the specialist team.

How carers help

  • Safe movement and falls prevention as involuntary movements change balance.
  • Extra time and care with eating and drinking, following swallowing advice, and high-calorie snacks when advised.
  • Clear, calm communication and enough time for the person to answer.
  • Structure and routine, which help with changes in thinking and mood.
  • Support for family members, who may also be coming to terms with what the condition means for them.

Consistency matters

People living with Huntington’s often do best with the same small team of carers who know them well. We plan rotas with that in mind and review care regularly as needs change. Live-in care is an option when support is needed throughout the day.

The Huntington’s Disease Association offers specialist advice to families across England.

FAQ

Questions families ask

Do your carers give medical treatment for Huntington’s disease?
No. Our carers provide personal care, practical help and company, and support medicines as set out in the care plan. Diagnosis, treatment and clinical procedures stay with the GP, nurses and specialist teams, and we work alongside them.
Where is this care available?
Home care visits and live-in care are both available across England, managed from our office in Liverpool.
How do we start?
Call 0151 305 9969, send a WhatsApp or use our contact form. We will talk it through, then visit to plan the care with you.

Arrange care at home

Call, WhatsApp or send a message. Tell us what is happening and we will talk the options through with you, with no obligation.

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